Article Author: Society neglecting needs of people with rare diseases, AKU moot told
Media Source: The News (Pakistan)
Date: 8 March 2020
On 6 March in Karachi,a conference was organised at the Aga Khan University (AKU) to mark Rare Disease Day 2020. Experts explained that policymakers and stakeholders had to pay greater attention to the challenges posed by rare diseases in Pakistan. Dr Bushra Afroze, Associate Professor at the AKU and a clinical geneticist at the university’s teaching hospital, shared the story of Sadia Manzoor (a girl from a small town in Sindh) to explain how the health care system’s shortcomings were affecting those living with rare diseases.
